Pages of Interest

Wednesday, November 19, 2008

Brendan's Awareness Project for his Baby Brother Nimkee

My eldest son Brendan began this project during my pregnancy with Bennett-Chadlen following his Trisomy diagnosis. It is his desire to spread Awareness for all special children in the world. Please check out the above links and if you have accounts, leave him a comment of support, or leave one here. I'll be sure he sees it!

I've taken this from Brendan's myspace page:

About Introducing Bennett I started this project in memory of my little brother Bennett-Chadlen who passed away in april 2007 due to a chromosomal abnormality called Trisomy 13, aka Patau Syndrome, and a non-severe Congenital Diaphragmatic Hernia. To get info on this and other types of Trisomy and CDH, please visit the following link or visit Bennett-Chadlen's myspace page.

Hailing from Manitoulin Island, Ontario, Canada, Introducing Bennett delivers dirty, soulful acoustic music to your ears. Now unchained, the young artist of former band Tragedy Ends kicks it off with a whole new sound. Currently working on his new album: Observe, Introducing Bennett will bring a tear to your eye.. please bring Kleenex.

Also check out Introducing Bennett's YOUTUBE channel:

Saturday, November 8, 2008

Pray for Ava!

This post is dedicated in honour of a beautiful little girl named Ava. She is 2 years old, and is a CDH survivor.

5 weeks ago Ava became a very sick little girl. Luckily her very quick thinking and relentless mother wouldn't take NO for an answer....and insisted that x-rays be taken and a diagnosis made. Within hours Ava was airlifted to another hospital where she has remained to this day.

Click here for Ava's blog

On her page you will find loads of inspirational montages, informative links to CDH information.....and lots and lots of endless love!!!!

I love you Ava!


The Bear-ers of Grace


The Bearers of Grace Foundation is operated by Lise, who is a very dear friend of mine. This project was created in memory of their daughter Grace. The following is an exert from their home page.

More information on Grace's family may be found at the following link, on page 6. Please check it out!

The Bearers of Grace Foundation provides compassionate caring support as well as a listening ear and heart to a parent or parents who have lost a child. Additionally, it creates opportunities to honor the memory of the child and to share the hope and promise of God’s grace and mercy.

If you or a family member or friend has lost a child, contact Bearers of Grace for caring support. When Bearers of Grace office is notified about the death of a child, they will bring or send a teddy bear so that the mom and dad will have something to hold in their arms. Additionally, they will receive a folder of care, which includes meaningful information to assist them during their time of loss.

Through your donation, Bearers of Grace will provide a teddy bear and folder to give or send to the grieving family. You may choose a scripture or one will be supplied for you.

Now I Lay Me Down To Sleep

If your unborn child has been diagnosed with a poor prenatal diagnosis, please consider seeking out this organization. I was blessed to have met a wonderful woman who did some prenatal photos for me, as well as during Bennett-Chadlen's time in the NICU.

I also had the opportunity to have a photographer come to the NICU on the day that Bennett-Chadlen grew his tiny, perfect wings. He stayed for hours..........

These photos are so very precious to me for so many reasons. These photographers captured the very essence of my emotions at that place in time.

These photos will provide me with a lifetime of irreplaceable memories......

My photos may be viewed here on this the left.

The following video is a sampling of photographs of other precious babies whose lives were touched by Trisomy, just as Bennett-Chadlen was.