~A New Year~~endless possibilities!

Dear Nimkee,
As you know, we have another new year upon us. I cannot believe it has been so long since I last held you in my arms and kissed your softness. I miss you more than words can say, but know that Mommy and your brothers are doing well.

We are still working away here, remembering you in prayer each night, thanking our Creator for his gift of YOU! We feel you with us always, and love that we were so blessed to know you.

As another year unfolds, so does my undying commitment to help others whose lives have been blessed with a special baby like you. You opened up my heart in immeasurable ways, and because of you I am finding my way through this great big world feeling safer and more loved than ever before.

~God is good!

Gchi-miigwech, gzaagin Nimkee..xxoo

Our first kiss........made me cry.......he was 5 days old. I borrowed the photographers stool to reach him.

Almost home.....we love you Bennett-Chadlen

Dear Nimkee.......

From Jeff's pics

Dear Nimkee,
I cannot believe it has been 2 years already since I learned of your Trisomy 13. I remember silently rocking you in front of the fire, rubbing you and thinking----how can this be? How can this little baby growing inside of me be so ill? Why? I just don't understand!

As I make my way through a second Christmas without you, my heart aches. I miss you so much.

Tonight I went to the Candy Cane Festival with your big brothers and I saw a tiny new baby there. He was dressed in a Santa suit, with the little red hat--trimmed in white fur. I wanted to pick him up and hold him...and remember how good you felt in my arms.

I reached down and touched his tiny fingers, held his tiny hand. I stroked his cheeks, felt his dark, wavy hair which reminded me so much of your own. I saw him open his eyes, just waking from his nap....and remembered seeing you do the same.

I couldn't resist. I had to reach down and kiss him tenderly.....

And all I could think of was you......

Gzaagin Nimkee.....Mommy xxoo

From the Heart of a Parent, another NILMDTS video

Brendan's Awareness Project for his Baby Brother Nimkee

http://www.youtube.com/IntroducingBennett

http://www.myspace.com/introducingbennett

My eldest son Brendan began this project during my pregnancy with Bennett-Chadlen following his Trisomy diagnosis. It is his desire to spread Awareness for all special children in the world. Please check out the above links and if you have accounts, leave him a comment of support, or leave one here. I'll be sure he sees it!

I've taken this from Brendan's myspace page:

About Introducing Bennett I started this project in memory of my little brother Bennett-Chadlen who passed away in april 2007 due to a chromosomal abnormality called Trisomy 13, aka Patau Syndrome, and a non-severe Congenital Diaphragmatic Hernia. To get info on this and other types of Trisomy and CDH, please visit the following link or visit Bennett-Chadlen's myspace page.

http://my-baby-is-an-angel.blogspot.com/

Hailing from Manitoulin Island, Ontario, Canada, Introducing Bennett delivers dirty, soulful acoustic music to your ears. Now unchained, the young artist of former band Tragedy Ends kicks it off with a whole new sound. Currently working on his new album: Observe, Introducing Bennett will bring a tear to your eye.. please bring Kleenex.

Also check out Introducing Bennett's YOUTUBE channel: http://www.youtube.com/IntroducingBennett

Pray for Ava!

This post is dedicated in honour of a beautiful little girl named Ava. She is 2 years old, and is a CDH survivor.

5 weeks ago Ava became a very sick little girl. Luckily her very quick thinking and relentless mother wouldn't take NO for an answer....and insisted that x-rays be taken and a diagnosis made. Within hours Ava was airlifted to another hospital where she has remained to this day.

Click here for Ava's blog

On her page you will find loads of inspirational montages, informative links to CDH information.....and lots and lots of endless love!!!!

I love you Ava!