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Wednesday, March 13, 2013


Today is TRISOMY 13 AWARENESS DAY, a day when families like mine can join together and remember our precious children and know we aren't alone.

Bennett-Chadlen, aka Nimkee, was born on March 29th, 2007 at Mount Sinai Hospital in Toronto, Ontario, Canada, and grew his tiny, perfect wings 8 days later at the Hospital for Sick Children's NICU (neo-natal intensive care unit).

For more information about Trisomy 13, please visit this link:

Where there's love, there is HOPE xxoo

~Gzaagin Nimkee ~ Forever in our hearts ~ Tattooed on my soul ~

Monday, October 15, 2012

~October is Pregnancy & Infant Loss Awareness Month~

~Did you know that October is PREGNANCY & INFANT LOSS AWARENESS MONTH?
~Portal to Heaven~
October 15th is Pregnancy & Infant Loss Awareness Day.   

It’s a day when all of us that grieve the loss of our beloved babies can openly and publicly declare our remembrance of these tiny humans that have touched our lives forever.
~ ♥ October is Pregnancy & Infant Loss Awareness Month ♥ ♥ October 15th is Pregnancy & Infant Loss Awareness Day ♥ ♥ 
~ ♥ I always remember, and want you to never forget ♥ ~

~RIP Noah-Alexander Golder ♥ August 6th, 1999 ♥
~RIP Bennett-Chadlen Roy ♥ March 29-April 6, 2007 ♥
Death is not the end of our love, or our memories;  nor should that be expected.

Today we stand united to embrace our grief and request that each of  you take a few moments out of your day to think of our little angel-babies and reach out to support and remember alongside us.

At 7pm, I will be lighting candles in Loving Memory of babies everywhere, and keeping you all in my thoughts and prayers.

We always remember, and want you to never forget.

Sunday, May 1, 2011

~Today is International Babylost Mother's Day~

Today is International Babylost Mother's Day.  The following exert is from the blog: 
"United in grief, we find love and strength.
IBMD recognizes babylost women all over the world as mothers. Just because a woman loses her baby does not mean that she is not a mother anymore. She will be a mother for the rest of her life.

On the first Sunday in May we come together to celebrate our connection, our children and our hope for the future. IBMD is a day for love, peace, remembrance and recognition.

If you know a babylost woman why not tell her today that she is a beautiful mother by sending here one of our flowers from The Rainbow Flower Gallery."~International Babylost Mother's Day

~sampling of flowers from The Rainbow Flower Gallery~

 Today I send out comforting hugs, and prayers of peace, to all grieving Mother's around the world xxoo

Monday, March 14, 2011


~Today, myself and many other families around the world took part in remembering and honouring our Trisomy 13 angel-babies and miraculous survivors.  The 13th day of the 3rd month signifies the addition of the 3rd COPY of Chromosome 13 which contraindicates Trisomy 13.

This is a beautiful commemoration of other Trisomy 13 families that celebrate and cherish the blessings that we share. Thank you to Micayla, Angel Faith's Mommy, for putting this together and sharing it with others.

Love, Peace, & Nimkee-Blessings to all on this special day and ways xxoo

I love you Bennett-Chadlen xxoo

Monday, March 7, 2011


~The month of March is significant to me for a variety of reasons.

It is the month that my father and brother have their birthdays.

It is the month for Brain Injury AwarenessCongenital Diaphragmatic Hernia Awareness, National Nutrition Month, and Colorectal Cancer Awareness Month.

The most significant of all is that March 29th, 2007 was the day that my youngest son Bennett-Chadlen Roy was born at Mt. Sinai Hospital in Toronto, Canada, and spent his entire 8 day life at Sick Kids Hospital NICU.

Bennett-Chadlen was diagnosed with Trisomy 13 halfway through my pregnancy, in my fifth month.  I had no idea what it was, and what it meant for his life.  I just knew that it had to be something bad judging by the look of horror and  pain on my midwife's face as she tried to break it to me as gently as possible.

How do you tell someone that their unborn child is affected by a rare chromosomal abnormality which often results in death prenatally or shortly following birth?

March is TRISOMY AWARENESS MONTH.  It is the one month of the year when all families of children born affected with Trisomy can join forces and inform our family and friends what Trisomy is, and what it means to us.

What began is the worst possible nightmare that I could possibly imagine, has turned into an unbelievable journey of unconditional love, pure acceptance, grief, healing, and joy.  Why joy you might ask?

My son gave me the greatest gift imaginable.  He opened me up to the most intense feeling of love that I could never imagine without experiencing it firsthand.  There are no words for the wonder and depth of admiration that I felt for this tiny, unborn son of mine.  Every single moment of time, every tiny little heartbeat......was graciously celebrated within my womb.  I spent each day rubbing him through my belly, speaking his name as I described what I could see and what "we" were doing.  I spent countless hours rocking him in front of the fire at night, in a room lit only by the flames.  I celebrated every kick and prayed for many more.  I shed tears that I thought would never stop.

Through the gift of my blessed boy, I learned to live spontaneously and squeeze every amount of happiness out of each and every day that I can breath.  I welcome life, I rejoice in the ability to experience the rain, wind, snow, and sunshine.  I hug my boys as often as possible, and never allow a day to go by without them knowing how much they are cherished and loved.  The same goes for the special people and friends in my life.

Through the internet I was able to not only learn about the survivors and families affected by Trisomy 13, but I was also able to reach out and 'meet' others in similar situations and seek comfort and solace within their words of support which they so generously gave to me when I enquired or requested it.

As I near my sweet boy's 4th Heavenly Birthday I can't help but feel sentimental and think back to those final days 4 years ago as I was waiting for him to be born.

I can't explain it, but I can show you the beautiful photos which were provided to me courtesy of Heather Renee Morgan of Lifespark Photography.

Love, Peace, & Nimkee-Blessings to all my special Trisomy families today, and always xxoo