~TRISOMY 13 AWARENESS DAY, 2013~

Today is TRISOMY 13 AWARENESS DAY, a day when families like mine can join together and remember our precious children and know we aren't alone.

Bennett-Chadlen, aka Nimkee, was born on March 29th, 2007 at Mount Sinai Hospital in Toronto, Ontario, Canada, and grew his tiny, perfect wings 8 days later at the Hospital for Sick Children's NICU (neo-natal intensive care unit).


For more information about Trisomy 13, please visit this link:  http://trisomy13-patausyndrome.blogspot.ca/

Where there's love, there is HOPE xxoo

~Gzaagin Nimkee ~ Forever in our hearts ~ Tattooed on my soul ~

~October is Pregnancy & Infant Loss Awareness Month~

~Did you know that October is PREGNANCY & INFANT LOSS AWARENESS MONTH?

~Portal to Heaven~

October 15^th is Pregnancy & Infant Loss Awareness Day.   

It’s a day when all of us that grieve the loss of our beloved babies can openly and publicly declare our remembrance of these tiny humans that have touched our lives forever.

~ ♥ October is Pregnancy & Infant Loss Awareness Month ♥ ♥ October 15th is Pregnancy & Infant Loss Awareness Day ♥ ♥ 

~ ♥ I always remember, and want you to never forget ♥ ~

~RIP Noah-Alexander Golder ♥ August 6th, 1999 ♥
~RIP Bennett-Chadlen Roy ♥ March 29-April 6, 2007 ♥

Death is not the end of our love, or our memories;  nor should that be expected.

Today we stand united to embrace our grief and request that each of  you take a few moments out of your day to think of our little angel-babies and reach out to support and remember alongside us.

At 7pm, I will be lighting candles in Loving Memory of babies everywhere, and keeping you all in my thoughts and prayers.

We always remember, and want you to never forget.

~Today is International Babylost Mother's Day~

http://internationalbabylostmothersday.blogspot.com/

Today is International Babylost Mother's Day.  The following exert is from the blog: 

"United in grief, we find love and strength.

IBMD recognizes babylost women all over the world as mothers. Just because a woman loses her baby does not mean that she is not a mother anymore. She will be a mother for the rest of her life.

On the first Sunday in May we come together to celebrate our connection, our children and our hope for the future. IBMD is a day for love, peace, remembrance and recognition.

If you know a babylost woman why not tell her today that she is a beautiful mother by sending here one of our flowers from The Rainbow Flower Gallery."~International Babylost Mother's Day

~sampling of flowers from The Rainbow Flower Gallery~

 Today I send out comforting hugs, and prayers of peace, to all grieving Mother's around the world xxoo

~March 13th ~ TRISOMY 13 AWARENESS DAY~

~Today, myself and many other families around the world took part in remembering and honouring our Trisomy 13 angel-babies and miraculous survivors.  The 13th day of the 3rd month signifies the addition of the 3rd COPY of Chromosome 13 which contraindicates Trisomy 13.

This is a beautiful commemoration of other Trisomy 13 families that celebrate and cherish the blessings that we share. Thank you to Micayla, Angel Faith's Mommy, for putting this together and sharing it with others.

Love, Peace, & Nimkee-Blessings to all on this special day and ways xxoo

I love you Bennett-Chadlen xxoo

~MARCH is TRISOMY AWARENESS MONTH~

~The month of March is significant to me for a variety of reasons.

It is the month that my father and brother have their birthdays.

It is the month for Brain Injury Awareness,  Congenital Diaphragmatic Hernia Awareness, National Nutrition Month, and Colorectal Cancer Awareness Month.

The most significant of all is that March 29th, 2007 was the day that my youngest son Bennett-Chadlen Roy was born at Mt. Sinai Hospital in Toronto, Canada, and spent his entire 8 day life at Sick Kids Hospital NICU.

Bennett-Chadlen was diagnosed with Trisomy 13 halfway through my pregnancy, in my fifth month.  I had no idea what it was, and what it meant for his life.  I just knew that it had to be something bad judging by the look of horror and  pain on my midwife's face as she tried to break it to me as gently as possible.

How do you tell someone that their unborn child is affected by a rare chromosomal abnormality which often results in death prenatally or shortly following birth?

March is TRISOMY AWARENESS MONTH.  It is the one month of the year when all families of children born affected with Trisomy can join forces and inform our family and friends what Trisomy is, and what it means to us.

What began is the worst possible nightmare that I could possibly imagine, has turned into an unbelievable journey of unconditional love, pure acceptance, grief, healing, and joy.  Why joy you might ask?

My son gave me the greatest gift imaginable.  He opened me up to the most intense feeling of love that I could never imagine without experiencing it firsthand.  There are no words for the wonder and depth of admiration that I felt for this tiny, unborn son of mine.  Every single moment of time, every tiny little heartbeat......was graciously celebrated within my womb.  I spent each day rubbing him through my belly, speaking his name as I described what I could see and what "we" were doing.  I spent countless hours rocking him in front of the fire at night, in a room lit only by the flames.  I celebrated every kick and prayed for many more.  I shed tears that I thought would never stop.

Through the gift of my blessed boy, I learned to live spontaneously and squeeze every amount of happiness out of each and every day that I can breath.  I welcome life, I rejoice in the ability to experience the rain, wind, snow, and sunshine.  I hug my boys as often as possible, and never allow a day to go by without them knowing how much they are cherished and loved.  The same goes for the special people and friends in my life.

Through the internet I was able to not only learn about the survivors and families affected by Trisomy 13, but I was also able to reach out and 'meet' others in similar situations and seek comfort and solace within their words of support which they so generously gave to me when I enquired or requested it.

As I near my sweet boy's 4th Heavenly Birthday I can't help but feel sentimental and think back to those final days 4 years ago as I was waiting for him to be born.

I can't explain it, but I can show you the beautiful photos which were provided to me courtesy of Heather Renee Morgan of Lifespark Photography.

Love, Peace, & Nimkee-Blessings to all my special Trisomy families today, and always xxoo

Make video montages at www.OneTrueMedia.com

~What makes a Mother?~

What makes a Mother?

I thought of you and closed my eyes, and prayed to God today.

I asked, “What makes a Mother?” and I know I heard him say:

“A Mother has a baby, this we know is true.”

“But God, can you be a Mother when your baby’s not with you?”

“Yes you can”, He replied with a confidence in His voice,

“I give many women babies, when they leave is not their choice.

Some I send for a lifetime, and others for a day,

And some I send to feel your womb, but there’s no need to stay.”

“I just don’t understand this God, I want my baby here.”

 He took a breath and cleared His throat, and then I saw a tear.

“I wish I could show you what your child is doing today.  If you could see your child smile with other children and say:”

“We go to Earth and learn our lessons of love and life and fear.   

My Mommy loved me oh so much I got to come straight here.   

I feel so lucky to have a Mom who had so much love for me, 

I learned my lesson very quickly;   

My Mommy set me free.   

I miss my Mommy oh so much, but I visit her each day.

When she goes to sleep, on her pillow’s where I lay.   

I stroke her hair and kiss her cheek and whisper in her ear,

‘Mommy don’t be sad today, I’m your baby and I’m here.’”

“So you see my dear sweet one, your children are OK.   

Your babies are here in My home and this is where they’ll stay.

They’ll wait for you with me until your lesson is through,

And on the day that you come home they’ll be at the gates for you.

So now you see what makes a Mother, it’s the feeling in your heart.

It’s the love you had so much of right from the very start.”

~Jennifer Wasik

~Thinking of all my special Mommy friends that are spending their holidays missing their loved ones.  

I send prayers of peace, love, & healing to those that are spending their Christmas in the NICU (neo-natal intensive care unit) with their new babies, in need of some extra tender-loving care.  

May our Creator watch over you, and shower you with an endless abundance of Nimkee-Blessings.  

Peace be with you,

Melissa xxoo

~Reflections of Cystic Fibrosis~

http://www.cysticfibrosis.ca/(click here for more info)

I remember a visit to Sick Kids Hospital in Toronto, Ontario back in 2004.  Tristan (5--diagnosed with Spherocytosis which is a blood disease) was there to have his spleen and gallbladder removal surgery and we had to spend 11 days on the surgical floor as he healed.

I took advantage of having someone to sit with Tristan and I took a brief jaunt to grab a coffee and a snack.  In the nurses/admission area I saw a woman holding a very sick looking little baby.  He was several months old, and had tubes attached to him.  The mother had a very sad glint in her eyes, but smiled at me and said "Hi" as I approached.

My mommy senses kicked in and I just had to take a peak at her baby boy and let her know how cute I thought he was.  I then asked her what was wrong.  She told me he was born with Cystic Fibrosis and his life expectancy was nearing its end.  My heart took a leap and I felt my eyes instantly fill with tears.  I instinctively reached out and placed my hand on her arm and looked at her and told her how sorry I was to hear that as I had also lost a baby to stillbirth and it was a pain that I could relate to.

How does a parent maintain composure as they know their child's life is ending?  At that moment in time I couldn't even conceive of experiencing and surviving such a thing.

She thanked me for listening as she shared her son's all too brief life story and explained that all they could do at that point was provide him with comfort measures and hope for the best.  The only thing which may prolong his life was if another family lost their baby and donated the necessary tiny lungs to another family in need.

I walked away with tears and just felt such an incredibly overwhelming sense of sorrow and heartache for this woman.  Thoughts of her and her baby stayed with me over those next several days, weeks, months, and even years.  Every time I hear the words 'Cystic Fibrosis', this woman and her beautiful son instantly appear in my mind.

Despite the sadness which she was experiencing, she was still able to smile and truly appreciate that I had stopped and allowed her to speak with me.  She said most people just keep on walking and go about their day.  She just needed someone to listen, show compassion and empathy, and provide that little bit of comfort in that moment.

This link gives hope for the future for many families that are struggling to survive with Cystic Fibrosis.  Click here for more personal stories of hopes, dreams, and determination.

As we are in the midst of our holiday season, please remember all those that are spending their holidays in hospitals around the world, watching their loved ones slip away. 

What can you do?  Consider the generous, self-less gift of organ donation to help another family in need.

Life----it's in you to give.

Drop-side Cribs to be Banned in U.S.

http://www.youtube.com/user/USCPSC

The above link will take you to the Consumer Product Safety Commission's Youtube website where they have a vast selection of videos that I highly recommend that everyone take the time to watch.  If you are an expecting parent, babysitter, hands-on Grandparent, or just interested in safety and babies in general----then please, please, please----pour a cup of tea, sit down, and watch a few of these.  It could truly mean the difference between life or death...or serious harm.

The bottom line is that most of this can be prevented by taking the proper precautionary measures and not cut corners because you are in a rush.  You just may regret those moments that you can never undo.


CBC News message posted December 15th, 2010

The following is an exert from this post:

The U.S. government is outlawing drop-side cribs after the deaths of more than 30 infants and toddlers in the past decade.
The Consumer Product Safety Commission has voted unanimously to ban the manufacture, sale and re-sale of the cribs, which have a side rail that moves up and down, allowing parents to more easily lift their child from the crib.
Around for decades, drop-side cribs have come under scrutiny in recent years because of malfunctioning hardware, sometimes cheaper plastics, or assembly problems that can lead to the drop-side rail partially detaching from the crib.
When that happens, it can create a dangerous "V"-like gap between the mattress and side rail where a baby can get caught and suffocate or strangle.
On Tuesday, a consumer safety bill passed in Parliament in Ottawa. When it comes into force in the next few months, the federal government will be able to order the recall of unsafe goods such as drop-side cribs.
Currently, the Canadian government can only request a voluntary recall from manufacturers or distributors.
© The Canadian Press, 2010

~My two cents~~There will always be those that want to criticize about the 'new' parenting advice and will say things like---"oh, how did any of us survive with those cribs?  my gramma told me she slept in a basket or a dresser drawer".....bla bla bla.....You get the hint!

Well, be as judgmental, defensive, or snide as you want to be, but let me say this.  I have given birth to 6 sons and only one of them is currently healthy.

~Now please bear with me while I share a bit about my own experiences.  I can honestly say that I have faced the odds and struggled with a lot of things that were completely out of my hands to prevent.  (Stepping on my soapbox now!)

My eldest son was struck by a truck when he was 4---(and no, he wasn't in my care when it happened but that's besides the point)---my second and fifth sons have a rare blood disease (2nd son had his spleen and gallbladder removed due to this)---my third son was stillborn---my fourth son was born healthy and still is----(I count my blessings each and every day)----and my 6th (last) child was born with Trisomy 13 and passed away at 8 days of age.  I also lost my husband, marriage, business, and future family life due to my (ex) husband's brain injury while on duty as a firefighter on December 19th, 2002.  He did not pass away, but he will never be the same man I married.

I do not play the lotto because life is a big enough gamble already and I truly just feel grateful enough to be able to sit here and write this with my sensibilities still intact!

The moral of this story----don't take risks when we know what may happen.  I cannot turn back the hands of time, and would rather look ahead and feel confident with the smart choices that I have made when it comes to family safety, than have to live with a future regretting the educated decisions that I chose to ignore because I thought "it could never happen to me".  Please, don't be that person.  If it happened to me, or it happened to someone else---it can happen to you or to someone you know.

Arm yourself-----be safe.  Most of all.....be happy.

Love, Peace, & Nimkee-Blessings to all this holiday season and every day.

~Hats of Hope ~ Project 150~

http://twomomsltd.blogspot.com/2010/10/hats-of-hope-project-150.html

~The following statement is an exert from the above blog:

"Approximately 150 Kentucky kids are diagnosed with cancer each year. Kentucky children have a greater proportion of new solid malignancy cancer cases than anywhere else in the United States."
~ UK Pediatric Research Institute

 What is "Project 150" you may ask?  Project 150 was inspired by a compassionate little girl named Jesse, who was named after her mother's childhood friend who sadly passed away from cancer.  Jesse's mother discusses how she read the above quote to her 5 year old daughter, and Jesse's response was that she wanted to be able to knit and provide hats to kids with cancer by Thanksgiving because

"that's when it will be getting too cold to not have one if you are bald." ~ Jesse, 5yrs old.

This website explains that in the year of 2010, the average cost of cancer care for one child patient is approximately $36, 800, so Jesse would also like to try and raise enough money to help these families that so greatly require this financial assistance.

"Two Moms is now selling Children's Cancer Awareness Ribbons on our etsy store to help reach our $36,800 goal! Come check them out now! 100% of sale price will go right to Project 150!" ~ Aura, mom of Jesse

http://www.etsy.com/listing/60704482/hats-of-hope-childrens-cancer-awareness

http://www.etsy.com/listing/60704482/hats-of-hope-childrens-cancer-awareness

 For more information, please click on the links provided.  Feel free to share this information with others to help raise Awareness, and help these families.

Love, Peace, & Nimkee-Blessings,
Melissa xxoo

"In addition, to reach our 150 Hat goal, we are offering free hat making parties to anyone who might be interested in learning how to make the hats, with the only caveat being that everyone in the party donate the first hat they make to the project. We are also accepting knit and crocheted hats from anyone who is willing to send them to us!  

(all hat donations can be sent to: Project 150 C/O Jesse Paige, 191 Baybrook Circle, Nicholasville, KY. 40356.)

~♥ ♥ TODAY WE REMEMBER UNITED, EVERY DAY WE REMEMBER IN OUR HEARTS ♥ ♥ ~

~October 15th is a monumental day for families like mine, for it's the ONE day all year that we are recognized and given permission to mourn openly and remember our beloved ^Angel^Babies.

This is monumental as much of society still perpetuates the old way of thinking, instilling the Taboo Silence of Infant Loss.  A mother never forgets the day a child is born, regardless of the duration of that pregnancy, or newborn's life.  

All that we ask is that you all try to imagine what we've gone through, and understand with compassion that we are doing our very best to strive and survive through the greatest heartache imaginable.

It is a loss of hopes and dreams of future days spent cuddling as we watch our children learn and grow.  

Be gentle with us, as we are with you, for we also understand that it's so very difficult for you to deal with our grief.

Once a year on this date, families around the world unite and remember their angel-babies in a variety of ways.

http://www.october15th.com/

Many others, like myself, will release balloons in Loving Memory of our Angel Babies.  

In conjunction with Project Sweet Peas, and their balloon release event, I too released balloons to the babies of the families that sent in their requests.  I released balloons for 87 babies on my list; together Project Sweet Peas as a whole released balloons for over 400 little lives lost too soon.

My second angel-baby Bennett-Chadlen was born on March 29, and grew his tiny wings 8 days later on Good Friday, April 6th, 2007 at Sick Kids Hospital in Toronto, Ontario

My first angel, Noah-Alexander, was born with wings on August 6th, 1999

Tristan, Tanner, Mason, & Rheanne were there to help honour the memory of their beloved siblings

My boys and I ready to release the balloons!

Up, up, & away.....*photo courtesy of my boys as I was cutting the ties!

On behalf of Nimkee Blessings, I want to wish all families of ^Angels^ peace and comfort in your hearts, knowing that we all remember with you.  I wish you strength to get through the difficult moments as they inevitably come, and courage to face another day.  Set small goals, and don't fight the feelings.  Get through today.......then do it again tomorrow.  Be gentle with yourself.


~Love, Peace, & Nimkee-Blessings to all~

~ ♥ ♥ Today, we remember united; Every day we remember in our hearts ♥ ♥ ~

~1 candle for Noah-Alexander, 1 candle for Bennett-Chadlen, 1 candle for all~

~LaBelleDame.com~Jewelry to nurture and support the spirit~

~the following links are to a wonderful website which provides beautiful keepsake jewelry for mothers, grandmothers, aunts.....and also offer cards and links to support resources.

For every purchase made by following one of these links, I will receive a 15% discount which I am planning to put towards the purchase of items for recipients of my Nimkee-Blessings Memorial gift bags for families with newborns at the NICU (Neonatal Intensive Care Unit) of Toronto, Sick Kids Hospital.


Thanks in advance~Melissa Roy, project leader for Nimkee Blessings


Miscarriage and Infant Loss Memorial Jewelry:






Miscarriage, Stillbirth and Infant Loss Jewelry -Customised jewelry to celebrate the life of a child lost in miscarriage, stillbirth and infant loss. Each piece is created using carefully selected symbols to help support the grieving parent after the loss of a baby.





Fertility Jewelry:



Pregnancy Jewelry:



Memorial Jewelry -Customised jewelry to celebrate the life of a loved one. Each piece is created using carefully selected symbols to help support the grieving process, and life after loss.


Fertility Jewelry - Each piece is created using carefully selected symbols and gemstones to help support the couple who is trying to conceive. Sensitive pieces make wonderful gifts for those who must walk a longer road to get the baby they dream of.


Pregnancy and Birth Jewelry -Customised jewelry to celebrate and support your pregnancy and birth. Created using carefully selected gemstones and symbols to honour this exciting time!


Pet Memorial Jewelry - Pet Loss - Cat and Dog Sympathy Gifts
Pet memorial jewelry created to keep your cat and dog's memory close after the loss of a pet. Touching pet loss sympathy gifts. Free online pet memorials

~CLAIRE'S HOPE~

http://www.claireshope.com/

~Claire's Hope is a beautiful website created in Loving Memory of a little girl named Claire Hope Cox.  Like Bennett-Chadlen (prenatally diagnosed with Trisomy 13), Claire was born with a rare chromosomal syndrome called Trisomy 18, or Edward's Syndrome.  Despite her poor prenatal diagnosis, her parents welcomed her into their waiting arms, and continue to feel blessed for the gift that Claire is in their lives.

Claire's family has created not only this beautiful website, but also a real place where families can go to remember and memorialize the lives of their own babies who left this world all too soon.

Claire's Hope, and Hope's Corner, are located in Mobile, Alabama, in the halls of a 3-story building which used to house an abortion clinic.

(taken from the website)

-"On November 28, 2008, Hope’s Corner was opened to the public as a memorial, a museum, a tribute and a place where women, couples and families affected by crisis pregnancies can get the information they need to honor the sanctity of human life."

Like me, Claire's family does not judge or scorn a parent's decisions regarding the lives of their unborn children.  We all have heartbreaking choices to make, and everyone is welcome to pay tribute to their loved ones amongst the halls of Hope's Corner---whether it be on the "Wall of Forgiveness", the "Children's Garden", or "The Virtual Wall".

"Claire’s Hope is your sanctuary and you are always welcome and will always be uplifted here."

~HALO SLEEPSACK~

Every now and again I stumble upon something too amazing to keep to myself.  This company is one of those!  They manufacture wearable sleeping bags for  your baby, which not only keeps them warm as they nap, but also keeps them safe as there are no blankets to gather up around the baby's face.


click here to visit the website for~HALO SLEEPSACK~ 

The website offers links to safety tips, and info about preventing SIDS.  There are HEALTH links, MEDICAL links, where to purchase links----check it out!


I have a very dear friend that lost her 6 month old daughter to this devastating syndrome.  For those of you that don't know what SIDS stands for, it means "SUDDEN INFANT DEATH SYNDROME"---and it happens all too often for unexplainable reasons.  


Another heartbreaking story can be found at this LINK.
~exert from the site 
"Every year SIDS (Sudden Infant Death Syndrome) and accidental suffocation claim the lives of 5,000 babies. Our founder Bill Schmid and his wife lost their first born to SIDS. From this tragedy, HALO® and its mission were born. For over 15 years we've been creating products that help keep babies sleeping safely and help in the fight against SIDS through education and by donating a portion of every sale to SIDS charities."


If you or someone you know is the parent of a newborn, or about to become a new mother, consider purchasing one of these HALO SLEEPSACKs.  It's such a practical and beneficial gift for so many reasons.


If you are a grandparent, or babysitter----please click here for a link to safety info about how to lay the baby down to sleep safely.  SAFE SLEEP TIPS  They also offer downloaded information that you can print off and keep handy for those times when you aren't around to lay your little one down to rest.


~HALO SLEEPSACKS~ are available at retailers through North America.  Click here for a location near you!  https://www.halosleep.com/store_locator/


For information about the products available, click on the following link:  https://www.halosleep.com/products/


Let's work together to keep our babies safe.


Congratulations to all new parents, or those who are "soon-to-be",


Much Love, Peace, & Nimkee Blessings to you all,


Melissa 

♪♫♪♫♪ ~ INTRODUCING BENNETT ~ ♪♫♪♫♪

{Brendan, brother to Bennett-Chadlen}

~INTRODUCING BENNETT is a band hailing from Manitoulin Island, Ontario, Canada. What started as my eldest son's solitary project in 'Loving Memory' of his youngest brother, BENNETT-CHADLEN, is now a full-fledged band guaranteed to entertain any crowd.

Recent News:

~**~NIMKEE BLESSINGS & INTRODUCING BENNETT~**~will be hosting a
benefit concert at Gordon's Park Eco-Resort on beautiful Manitoulin
Island...SUNDAY, SEPT 5th! We will have lots of great entertainment for
young and old alike, & fun things for the kiddies to do!

~ALL PROCEEDS go towards helping families with babies in the SICK KIDS HOSPITAL NICU in Toronto, Ontario. More info available on facebook at this link:

~Nimkee Blessings~facebook event info

~Introducing Bennett appeared at the 3rd Annual Crystal Shawanda Homecoming concert in Wikwemikong, Manitoulin Island, on July 30th, following Crystal's performance. They've been invited back, so come on out next year and watch them play!!

~Brendan and Jay entering the concert grounds~

~on-stage at the Crystal Shawanda Homecoming Concert~

{Pete Jones ~ lead vox}

{Jason Girdwood ~ drummer, vocals}

{Hercules ~ mascot extraordinaire, belongs to Tedd Peltier ~ Bass player}

Just another day in paradise!

Brendan, big brother to Bennett-Chadlen

Lost in a sea of green, but making good time ~ love the paddles guys!

"Introducing Bennett"

~4-piece power-house from Manitoulin Island, "Introducing Bennett" brings the noise of your favourite modern day tunes and old alike.

~Currently working on originals, soon to be released at the Nimkee Blessings concert! Come on out and witness the grand unveiling of some guaranteed hits, by some very talented lads! :O)

Peter Jones - Lead Vox

Brendan Pinand - Guitar, Vox

Tedd Peltier - Bass, Vox

Jason Girdwood - Percussion, Vox

Contact Info:

Email: introducingbennett@hotmail.com

Office: (705) 368-3579 or (705) 370-1583

Websites:

~If you have facebook, join up through these 2 links, share with friends, keep up on all the latest happenings, new vids, & cool pics!

~become a FAN of Introducing Bennett on facebook by clicking this link.

~Click here to join Introducing Bennett's facebook GROUP!

~If you have a youtube account, subscribe and keep up-to-date on all new uploads!

http://youtube.com/introducingbennett

~If you have myspace, send a friend request, keep in touch with up-to-date announcements, new songs, and just a lot of cool stuff!

http://myspace.com/introducingbennett

*photos courtesy of Moi & the lovely Sophie J*